Friday, June 15, 2012
Tuesday, June 12, 2012
My Secondary Diagnosis
On May 3, I had a Doctors appointment and learned I have leptomengial disease, which means my cancer has spread to my brain. I had a heads up on May 1 because I had a MRI and Dr. Matei called me a couple hours following my procedure. When I did finally see her she told me that to diagnosis this kind of cancer was hard to do and that the prognosis is very poor. 2-4 months with out treatment and with treatment possibly up to a year.
Sadly, the most devastating thing she said was that I was retiring that day, I had clients scheduled and would have to cancel them. How do you cancel a whole caseload without warning? I'm s,orry so and so I wont be seeing you today or ever again. Although what came next was also upsetting she sent me to Penrose hospital for a spinal tap collection of fluid and intrathecal spinal tap chemortherapy which has now turned to 7 procedures.
I am now receiving the intrathecal chemotherapy directly into my brain through my Ommaya at Rocky Mountain Cancer Center. I had surgery on May 30 to place the Ommaya port in my head.
Susan
Sadly, the most devastating thing she said was that I was retiring that day, I had clients scheduled and would have to cancel them. How do you cancel a whole caseload without warning? I'm s,orry so and so I wont be seeing you today or ever again. Although what came next was also upsetting she sent me to Penrose hospital for a spinal tap collection of fluid and intrathecal spinal tap chemortherapy which has now turned to 7 procedures.
I am now receiving the intrathecal chemotherapy directly into my brain through my Ommaya at Rocky Mountain Cancer Center. I had surgery on May 30 to place the Ommaya port in my head.
Susan
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