Today must have been a nice day in Maine because my relatives were at camp on China Lake and pictures were posted on Face book. The lake was as smooth as glass and they were taking the boat out. The kids were swimming and the adults were visiting and I would have loved to be there.
As I remain home bound and bed bound, I think a lot about where I would like to go and what I would do. Sometimes. I invite my mother and we plan a whole day. I have a steady supply of visitors who come to cheer me. I am so grateful for that, so much better to visit live and in person. I am going to love "in person", whenever I can, once I am on my feet. I wince, when I remember how many times I promised to stop by, call or meet someone for lunch but didn't.
If you have an opportunity to see your extended family take advantage. Family relationships are fragile and can get lost or damaged easily. I recently missed out on seeing cousins I haven't seen since I was a teenager. We grow up and spread out, go to college, move to dream locations and then we are broke and don't come home for awhile. I hope to change this for me and my son. I need to get back on my feet and get home more often. I cannot walk at the moment but this gives me motivation to do my daily excercising to facilitate this so I can.
God Bless You All!!
Susan
Thursday, August 30, 2012
Sunday, August 26, 2012
Saturday, July 21, 2012
My Wheelchair
My wheel chair was stolen out of the hospital while I was having a procedure done. It was not a hospital chair, but a loaner from a dear friend. When we got ready to leave, we were horrified at this discovery, as were the hospital staff who promised to find it and return it to us.
Sometimes, it is not how you get there but the journey itself that is important. Every once and awhile, it is how you get there. I can assure you that God didn't let us suffer long with the heavy hospital wheelchair. He provided us with a similar used transport chair and then returned the original back to us. I have been incredibly supported by so many people, which is represented, by the way the chair holds me physically and carries me to where I need to go as I recover.
Other times, or, and also, it is the journey. I am learning about friendship, health, navigating the medical health system, communication, patience and so on and so forth. You may call me amazing for having a good attitude in times of crisis but I will continue to shrug you off. I have to focus on the tasks at hand. I don't want to waste any energy on something that will detract from my success and my outcome. For now, whether I be working physically, spiritually, or otherwise, I am working on learning what I am meant to learn. So, that I may proceed on to what may be a more pleasant aspect of this journey and I will try to maintain a good attitutude. There are plenty of bad attitude days as well.
This is the wheelchair that was taken and returned. I had the photo taken in the flower garden my upstairs neighbor planted for me to cheer my window.
Susan
Friday, June 15, 2012
Tuesday, June 12, 2012
My Secondary Diagnosis
On May 3, I had a Doctors appointment and learned I have leptomengial disease, which means my cancer has spread to my brain. I had a heads up on May 1 because I had a MRI and Dr. Matei called me a couple hours following my procedure. When I did finally see her she told me that to diagnosis this kind of cancer was hard to do and that the prognosis is very poor. 2-4 months with out treatment and with treatment possibly up to a year.
Sadly, the most devastating thing she said was that I was retiring that day, I had clients scheduled and would have to cancel them. How do you cancel a whole caseload without warning? I'm s,orry so and so I wont be seeing you today or ever again. Although what came next was also upsetting she sent me to Penrose hospital for a spinal tap collection of fluid and intrathecal spinal tap chemortherapy which has now turned to 7 procedures.
I am now receiving the intrathecal chemotherapy directly into my brain through my Ommaya at Rocky Mountain Cancer Center. I had surgery on May 30 to place the Ommaya port in my head.
Susan
Sadly, the most devastating thing she said was that I was retiring that day, I had clients scheduled and would have to cancel them. How do you cancel a whole caseload without warning? I'm s,orry so and so I wont be seeing you today or ever again. Although what came next was also upsetting she sent me to Penrose hospital for a spinal tap collection of fluid and intrathecal spinal tap chemortherapy which has now turned to 7 procedures.
I am now receiving the intrathecal chemotherapy directly into my brain through my Ommaya at Rocky Mountain Cancer Center. I had surgery on May 30 to place the Ommaya port in my head.
Susan
Thursday, May 31, 2012
My delicious morning
Coffee is a beautiful ritual to tell yourself ...I love you. To hear it brewing, smell it and anticipate it are so much fun. My favorite part is preparing the blonde and sweetness aspect and stirring it all in...such an event. Then sipping til it cools just til perfect. And if you could see the view I have from my hospital bed of the city and mountains you would be jealous of me. Garden of the Gods is perfectly framed in the window. I'm having a lovely morning.
Cheers!
Susan
Thursday, May 24, 2012
St Patrick's Breastplate Prayer
I bind
unto myself today
The strong Name of the Trinity,
By invocation of the same,
The Three in One and One in Three.
The strong Name of the Trinity,
By invocation of the same,
The Three in One and One in Three.
I bind this day to me for
ever.
By power of faith, Christ's incarnation;
His baptism in the Jordan river;
His death on Cross for my salvation;
His bursting from the spicèd tomb;
His riding up the heavenly way;
His coming at the day of doom;
I bind unto myself today.
By power of faith, Christ's incarnation;
His baptism in the Jordan river;
His death on Cross for my salvation;
His bursting from the spicèd tomb;
His riding up the heavenly way;
His coming at the day of doom;
I bind unto myself today.
I bind unto myself the power
Of the great love of the cherubim;
The sweet 'well done' in judgment hour,
The service of the seraphim,
Confessors' faith, Apostles' word,
The Patriarchs' prayers, the Prophets' scrolls,
All good deeds done unto the Lord,
And purity of virgin souls.
Of the great love of the cherubim;
The sweet 'well done' in judgment hour,
The service of the seraphim,
Confessors' faith, Apostles' word,
The Patriarchs' prayers, the Prophets' scrolls,
All good deeds done unto the Lord,
And purity of virgin souls.
I bind unto myself
today
The virtues of the starlit heaven,
The glorious sun's life-giving ray,
The whiteness of the moon at even,
The flashing of the lightning free,
The whirling wind's tempestuous shocks,
The stable earth, the deep salt sea,
Around the old eternal rocks.
The virtues of the starlit heaven,
The glorious sun's life-giving ray,
The whiteness of the moon at even,
The flashing of the lightning free,
The whirling wind's tempestuous shocks,
The stable earth, the deep salt sea,
Around the old eternal rocks.
I bind unto myself today
The power of God to hold and lead,
His eye to watch, His might to stay,
His ear to hearken to my need.
The wisdom of my God to teach,
His hand to guide, His shield to ward,
The word of God to give me speech,
His heavenly host to be my guard.
The power of God to hold and lead,
His eye to watch, His might to stay,
His ear to hearken to my need.
The wisdom of my God to teach,
His hand to guide, His shield to ward,
The word of God to give me speech,
His heavenly host to be my guard.
Against the demon snares of sin,
The vice that gives temptation force,
The natural lusts that war within,
The hostile men that mar my course;
Or few or many, far or nigh,
In every place and in all hours,
Against their fierce hostility,
I bind to me these holy powers.
The vice that gives temptation force,
The natural lusts that war within,
The hostile men that mar my course;
Or few or many, far or nigh,
In every place and in all hours,
Against their fierce hostility,
I bind to me these holy powers.
Against all Satan's spells and wiles,
Against false words of heresy,
Against the knowledge that defiles,
Against the heart's idolatry,
Against the wizard's evil craft,
Against the death wound and the burning,
The choking wave and the poisoned shaft,
Protect me, Christ, till Thy returning.
Against false words of heresy,
Against the knowledge that defiles,
Against the heart's idolatry,
Against the wizard's evil craft,
Against the death wound and the burning,
The choking wave and the poisoned shaft,
Protect me, Christ, till Thy returning.
Christ be with me, Christ within me,
Christ behind me, Christ before me,
Christ beside me, Christ to win me,
Christ to comfort and restore me.
Christ beneath me, Christ above me,
Christ in quiet, Christ in danger,
Christ in hearts of all that love me,
Christ in mouth of friend and stranger.
Christ behind me, Christ before me,
Christ beside me, Christ to win me,
Christ to comfort and restore me.
Christ beneath me, Christ above me,
Christ in quiet, Christ in danger,
Christ in hearts of all that love me,
Christ in mouth of friend and stranger.
I bind unto myself the Name,
The strong Name of the Trinity;
By invocation of the same.
The Three in One, and One in Three,
Of Whom all nature hath creation,
Eternal Father, Spirit, Word:
Praise to the Lord of my salvation,
Salvation is of Christ the Lord.
The strong Name of the Trinity;
By invocation of the same.
The Three in One, and One in Three,
Of Whom all nature hath creation,
Eternal Father, Spirit, Word:
Praise to the Lord of my salvation,
Salvation is of Christ the Lord.
Monday, May 14, 2012
Dear family and friends,
this week we reached a milestone in Susan’s battle with breast cancer. She was diagnosed with Leptomeningeal carcinoma which started as involvement of the lining of the spinal cord and brain and has now spread to the brain itself.
The symptoms are numerous and include problems with balance, dizziness, loss of sensation in her feet and hands, and on and on. The treatment includes both direct chemo injected into her spinal canal and radiation to the whole brain daily last week and this week. The treatments themselves are difficult and have many side effects.
Her prognosis for survival has been shortened although we still affirm that God will have the last word on this. The escalation of her disease has now required that she close her private counseling practice and retire. Susan has been an effective and compassionate practitioner and has enabled scores of patients to move forward again in their lives in a constructive and positive way. She will still be available by phone and email to some degree and we are thankful for that.
We are hunkering down for battle and covet your prayers and concern. On a more practical matter, many have asked what they can do, or expressed that they want to help. I asked Susan’s permission to post this so here is the long and short of it for those of you who are sincere in your offer. Susan has some credit card and other debt that she has been struggling to pay off. She has gotten behind due to her inability to work and is starting to get those collection phone calls. We have started a fund to settle these debts and take this load off her shoulders. To put it plainly, instead of sending the $4.99 Hallmark card, send her the $4.99 instead, with a little handwritten note of care and encouragement.
God bless you all for your continued support and prayer,
Becky Comeau
Wednesday, May 9, 2012
Saturday, February 11, 2012
Suffering
Guest Blog Written By Jo
Like Susan and Becky and many of you, I am blessed to have been raised by parents of a courageous faith. Amazing friends who bear witness to their trust in God surround me. I have been with many in their suffering—family, friends and precious patients in my hospice career. Faith and suffering are hardly strangers to each other.

I have just come from my regular visit with my great friend (since we were 18) Mac. Godfather to my son, Mac was a healthy, vigorous pillar of his church when for reasons we will never know, he suffered a massive stroke three years ago. Today, as other days, I wiped food from his face, rearranged his paralyzed limbs and combed his hair. We talk about old times, but he is easily tearful and confused. He is in pain. He will never be able to leave a nursing facility.
I went from the nursing home to meet up with his wife, my college roommate and still my best friend, Jane, in the home where she and Mac raised my godchild; Jane usually takes a break from the visit schedule that is her life when she knows I am at the facility. While she got ready for us to go out and grab a bite, I pondered a photograph on her wall that I took during one of our many combined family vacations. We were on the North Carolina Outer Banks, and the picture shows an outdoor shower stall at our rented house near the beach. You can see two sets of feet that face each other, just visible at the bottom of the stall. Mac and Jane. The caption I had inscribed on that framed picture was “Whither thou goest, I will go.” It was funny at the time. Now, during our dinner, I listened to Jane’s struggles as I do most every day -- how those words from the Book of Ruth are now lived out in her life.
I have no answer for why people suffer. I cared for my parents through excruciating suffering. (I remember wanting to bite the head off a chaplain intern who preached in the hospital chapel, where my dad was dying of brain cancer, that “if you aren’t getting better, your faith is lacking.”) I saw two of my children through mental illness—one of them suicidal and hospitalized off and on for years—as a result of childhood sex abuse. I have held, and listened to, the prayers of my brothers and sisters in faith as part of my church’s prayer ministry. I am about to check in on another great friend who last week heard the diagnosis of malignant melanoma. It’s a mystery, all this pain. But here’s what I believe.
Suffering is part of our human condition, be it physical, emotional or spiritual. I don’t know why some get more or less, better or worse. But I know that God does not will it, and I believe God cries for us. Sometimes, in prayer, I think I can almost hear God crying.
Many people share their “wisdom” on suffering: I read that “suffering is God’s megaphone to a deaf world.” What an awful thing to say. A god who slams us, his children, with pain and suffering to get our attention is not the God of love I know and worship. We are not guaranteed earthly safety, clarity, or no pain. We are promised, with a love that outlasts everything, that we are never alone. (You and I are part of that promise when we choose to be present for others.)
I believe in an incarnate, fully human Jesus that was far more than a lovely painting. He was oppressed and afflicted, “a man of sorrow and acquainted with grief.” Like you and Susan and Mac and me. There is no difficult place we can be where Jesus has not been.
I do believe in miracles and have seen them. I don’t know why some people get them and some people don’t. If I really understood, then they wouldn’t be miracles. But I know that miracles come in all sizes and shapes, and sometimes we don’t recognize them.
We do not suffer to learn a lesson, but we can sometimes learn something new because of it. Viktor Frankl was a concentration camp survivor who struggled to make sense of what happened to his family, became a noted psychologist and author. “Suffering ceases to be suffering at the moment it finds meaning,” observed Frankl. And that meaning is not why it happened, it is what we might do with it. My daughter found meaning from her years of profound illness by becoming an amazing ICU nurse-specialist, intimately present for the most frightened and most ill. I found meaning in my losses by dedicating my work to improving care of the very sick. Susan has found meaning in continuing her counseling to ease the pain of others, even as she experiences her own pain. And she endures to be a Mom.
I claim that all will be well with Susan.
Susan’s Christmas post on this blog was an honest cry from a brave and faithful woman who was suffering. I know that she’s had many difficult days since that post. How do we come to grips with suffering, our own and others’?

It’s all a mystery that I hold up to God every day. And even though I can’t be clear on the answer, I know I am heard, and I know the answer is there but out of my sight. I choose to take comfort in the belief that all will be well through God’s love.
Jo
Tuesday, February 7, 2012
Well Wishes From A Dear Friend
Dear Susan,
You are on my heart, love you. Ride out your storm, you been in this storm, it seems like forever and your night of confusion has been oh so long .you ship has lost anchor, and the storms have you drifting, on this morning come ride out the storm, God's right there with you, though may not feel him, but you are not alone hold on to Jesus .
AR
You are on my heart, love you. Ride out your storm, you been in this storm, it seems like forever and your night of confusion has been oh so long .you ship has lost anchor, and the storms have you drifting, on this morning come ride out the storm, God's right there with you, though may not feel him, but you are not alone hold on to Jesus .
AR
Saturday, December 24, 2011
My Christmas Wish
Then shall your light break forth like the dawn,
and your healing shall spring up speedily;
your righteousness shall go before you;
the glory of the LORD shall be your rear guard.
(Isaiah 58:8 ESV)
Father,
I am praying tonight and asking that you send me a Christmas miracle. I pray that life would return swiftly to my body. I long to play with my son. I want to have energy to serve You, to mother my child, to be a wife to husband, to work and play and live fully.
You have made many promises to me, both personally and in your Word and I claim them tonight. You said in Matthew 7:7 that if I ask and it will be given to me; if I seek I will find; and if I knock you will open the door for me. So Father, I am asking you for a health better than I knew before cancer, I am seeking your will over my life and strength because I am so frustrated, and I am banging on this door with all my might that You would hear me and open.
Romans 8:11 promises life to my mortal body because Your Spirit dwells within me. You have answered my urgent cry regarding my fatigue in Isaiah 40 when you said, that they who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint."
I have tried to be a good student through this experience and on this part of my journey. I have worked hard to keep my head up and a positive attitude securely in place. I confess that I am getting tired and that I feel sad because this is not the life that I want to live. It is not how I wanted to treat my child, when I finally had one, and it is not a life that I sincerely believe does me justice. I have too much to give to lay in bed too weak to move around and be useful. I pray for your mercy and ask that you heal me quickly because I honestly do not know how much more of this I can take.
I ask for forgiveness for where I have fallen short and I am working to practice forgiveness and patience in my life. I admit, I don't think I am very good at this yet but it is a work in progress. I hope for continued guidance and direction of where I need to improve and to respond faithfully where I am needed.
I pray all of this Father in Jesus' name, who died for me that I might live abundantly,
Susan
and your healing shall spring up speedily;
your righteousness shall go before you;
the glory of the LORD shall be your rear guard.
(Isaiah 58:8 ESV)
Father,
I am praying tonight and asking that you send me a Christmas miracle. I pray that life would return swiftly to my body. I long to play with my son. I want to have energy to serve You, to mother my child, to be a wife to husband, to work and play and live fully.
You have made many promises to me, both personally and in your Word and I claim them tonight. You said in Matthew 7:7 that if I ask and it will be given to me; if I seek I will find; and if I knock you will open the door for me. So Father, I am asking you for a health better than I knew before cancer, I am seeking your will over my life and strength because I am so frustrated, and I am banging on this door with all my might that You would hear me and open.
Romans 8:11 promises life to my mortal body because Your Spirit dwells within me. You have answered my urgent cry regarding my fatigue in Isaiah 40 when you said, that they who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint."
I have tried to be a good student through this experience and on this part of my journey. I have worked hard to keep my head up and a positive attitude securely in place. I confess that I am getting tired and that I feel sad because this is not the life that I want to live. It is not how I wanted to treat my child, when I finally had one, and it is not a life that I sincerely believe does me justice. I have too much to give to lay in bed too weak to move around and be useful. I pray for your mercy and ask that you heal me quickly because I honestly do not know how much more of this I can take.
I ask for forgiveness for where I have fallen short and I am working to practice forgiveness and patience in my life. I admit, I don't think I am very good at this yet but it is a work in progress. I hope for continued guidance and direction of where I need to improve and to respond faithfully where I am needed.
I pray all of this Father in Jesus' name, who died for me that I might live abundantly,
Susan
Friday, December 16, 2011
A Full Serving of Christmas Joy
My sister is here from Maine and we are trying to get all of our holiday celebrating in before she leaves. Sadly, it is only a week past chemotherapy so I am dragging a bit. My son is 2 years and 8 months and is in quite awe of all things Christmas and shiny. Today while he was napping and as I looked on, Mom, Dad and Tracey drug out all the boxes of Christmas decorations and put up the tree.
When I was a single woman I bought glass hummingbirds and glass three tiered bells for my Christmas decorations. These are not toddler friendly and he has a real tendency to be rough or wing things across the room. This year Dad had this brilliant idea to decorate the tree with my little wee bears which really brought me back. www.weebearvillage.com They are so cute and so funny. Check out the website. I have almost all of them.
I discovered them in a coffee shop, years ago, and found that they were way too irresistible to pass up. I indulged myself, thinking how much delight they would bring the child I hoped to have one day, but they brought me a lot of joy also. When I met Huy and downsized my house they all went into a box and I always felt sort of sad that I didn't display them somehow or have a use for them. I invested quite a bit of money in them and wondered if I had been foolish. Today all those doubts were brought to rest and I was given a full serving of joy as all those past hopes and wishes culminated into a magical moment when his eyes saw the tree and all the animals. He squealed and giggled and looked them all over. There is a crocodile, an octopus, a colorful peacock and on and on. They are all teddy bears wearing a complete and removable costume.
He seemed to know that we had done this for him. I don't believe that he had ever seen the toys before as they had been packed up. I think he thought it was the finest tree he had ever seen. When he saw the pig, he said, "PIG!" and made a pig sound. He kissed the duck costumed bear and said duck. He admired the lights and named the colors. This is going to be a fun Christmas for sure. He found my nesting Santa doll and Grampy helped him take it apart. He lined them all up on the table and then Grammy helped him put them all back together. He then scooped up the Santa and put him back on the table in his original resting spot.
I have a full heart this evening. The memory of this day will be with me always. I want to thank my generous family for all the heavy lifting today that I could not do. I was able to cut and ribbon the ornaments for the tree. I had a nice birds eye view when the magic Christmas moment occurred. It is nice to see the purchases I have made over the years and the special gifts I have safe guarded thrill my child. I think this will be one of my happiest Christmas' yet. It seems so many of my dreams have come true. I pray that God will give me some energy and stamina so that I may participate as much as my heart yearns.
Happy Holidays My Dear Friends,
Susan
When I was a single woman I bought glass hummingbirds and glass three tiered bells for my Christmas decorations. These are not toddler friendly and he has a real tendency to be rough or wing things across the room. This year Dad had this brilliant idea to decorate the tree with my little wee bears which really brought me back. www.weebearvillage.com They are so cute and so funny. Check out the website. I have almost all of them.
I discovered them in a coffee shop, years ago, and found that they were way too irresistible to pass up. I indulged myself, thinking how much delight they would bring the child I hoped to have one day, but they brought me a lot of joy also. When I met Huy and downsized my house they all went into a box and I always felt sort of sad that I didn't display them somehow or have a use for them. I invested quite a bit of money in them and wondered if I had been foolish. Today all those doubts were brought to rest and I was given a full serving of joy as all those past hopes and wishes culminated into a magical moment when his eyes saw the tree and all the animals. He squealed and giggled and looked them all over. There is a crocodile, an octopus, a colorful peacock and on and on. They are all teddy bears wearing a complete and removable costume.
He seemed to know that we had done this for him. I don't believe that he had ever seen the toys before as they had been packed up. I think he thought it was the finest tree he had ever seen. When he saw the pig, he said, "PIG!" and made a pig sound. He kissed the duck costumed bear and said duck. He admired the lights and named the colors. This is going to be a fun Christmas for sure. He found my nesting Santa doll and Grampy helped him take it apart. He lined them all up on the table and then Grammy helped him put them all back together. He then scooped up the Santa and put him back on the table in his original resting spot.
I have a full heart this evening. The memory of this day will be with me always. I want to thank my generous family for all the heavy lifting today that I could not do. I was able to cut and ribbon the ornaments for the tree. I had a nice birds eye view when the magic Christmas moment occurred. It is nice to see the purchases I have made over the years and the special gifts I have safe guarded thrill my child. I think this will be one of my happiest Christmas' yet. It seems so many of my dreams have come true. I pray that God will give me some energy and stamina so that I may participate as much as my heart yearns.
Happy Holidays My Dear Friends,
Susan
Sunday, December 11, 2011
Christmas Time!
If you have not have the pleasure of visiting a retail establishment, and having then been assaulted by Christmas music, then you should be informed that the Christmas time of year has returned. I know that things are different nowadays from when I was a kid. While I am picking up my Halloween candy, I could also select my Christmas candy canes and get a jump start on the Christmas holiday shopping. I am sure you can hear the edge in my voice, I confess, it drives me crazy. I would like an official law passed that no Christmas item can hit the shelves until December first out of respect for Thanksgiving. Ah but I digress, this is in fact a positive blog post. You have to keep that negativity under control or it slips out when you least expect it.
I am curious to know what item, food, or decoration just announces Christmas in your life? It may be hard for you to pick just one thing because it is hard for me. My grandmother always kept Christmas cactus' and they were huge and glorious. I have one in my office that is hot pink and it has 30 or so blooms on it. It is beautiful. It reminds me of Grammie Audet's house. My other grandmother always displayed a ceramic Christmas tree with little colorful lights on it and this revved up the Christmas spirit for me. I have always wanted to have one of those for my office but have yet to obtain one.
The one thing for me though, is the Christmas Angel Tree Topper that my parents purchased when I was a kid to decorate their tree. It was magical for me as a child, and it stirs those feelings in me now when I see it. It is next to me in the chair in this photo. I have given her a makeover. After twenty years her gold wire wings and dress had seen better days. I am forty now and terrified to leave the Christmas tree on if she lit up because I don't trust her wiring. Does it seem silly to you that I am considering having her re-wired?
As you get older, it may begin to seem like a lot of work to unpack all the Christmas decorations and put them all up, only to later take them all down and put them away. It was beginning to feel that way for me. Then the other day, I overheard my husband and son putting up or little 3 foot Christmas tree and lights. My son was extremely impressed and excited. He is fascinated by the lights and the ornaments. I then insisted we find our LL Bean embroidered stockings and hang those. They say Mom, Dad and Tan. He is 2 1/2 and he looked them over, read the names (with help), and then hooked them up with Huy. He reached his arm down into the bottom of a couple of them to see if there was anything in them but found nothing. He loves it and he doesn't even realize what is coming his way.
I hope that while I am helping him understand the true meaning of Christmas that he will also find some special foods and items that stir those holiday feelings for him. We started last year making the sugar cookies painted with colored icing. He liked it. He did paint his tongue quit a bit, though. When Auntie Tracey comes next week we will put up the tree and hang some ornaments. I am really looking forward to this year with my little boy. It reminds me of how important special memories are which is why I look forward to making some.
Merry Christmas and Happy Holidays Everyone!!
Susan
I am curious to know what item, food, or decoration just announces Christmas in your life? It may be hard for you to pick just one thing because it is hard for me. My grandmother always kept Christmas cactus' and they were huge and glorious. I have one in my office that is hot pink and it has 30 or so blooms on it. It is beautiful. It reminds me of Grammie Audet's house. My other grandmother always displayed a ceramic Christmas tree with little colorful lights on it and this revved up the Christmas spirit for me. I have always wanted to have one of those for my office but have yet to obtain one.
The one thing for me though, is the Christmas Angel Tree Topper that my parents purchased when I was a kid to decorate their tree. It was magical for me as a child, and it stirs those feelings in me now when I see it. It is next to me in the chair in this photo. I have given her a makeover. After twenty years her gold wire wings and dress had seen better days. I am forty now and terrified to leave the Christmas tree on if she lit up because I don't trust her wiring. Does it seem silly to you that I am considering having her re-wired?
I hope that while I am helping him understand the true meaning of Christmas that he will also find some special foods and items that stir those holiday feelings for him. We started last year making the sugar cookies painted with colored icing. He liked it. He did paint his tongue quit a bit, though. When Auntie Tracey comes next week we will put up the tree and hang some ornaments. I am really looking forward to this year with my little boy. It reminds me of how important special memories are which is why I look forward to making some.
Merry Christmas and Happy Holidays Everyone!!
Susan
Wednesday, December 7, 2011
Life Lesson #too high to count
My heart is grieved. My soul is weary. I need some recharging, I guess. As I sit in my chair, eager to be pressed into service, the stories I hear are hard to stomach. I have been wondering when the world went crazy and how bad I want to get off this ride.
Luckily, for me, I can only stand so much of this before I begin searching for an exit stragedy. I just do not like feeling bad and I begin working on shift. I have to shift my thoughts. I have to shift my focus. I need to lift my eyes. I need to do it quick before I get infected. You see these sorts of thoughts and feeling are contagious and this is not what I want to catch. It could lead to me feeling sorry for myself and I refuse to do that, allow that, or live in that space.
I am given this verse tonight and want to share it with you
And now, dear brothers and sisters, one final thing. Fix your thoughts on what is true, and honorable, and right, and pure, and lovely, and admirable. Think about things that are excellent and worthy of praise. Philippians 4:8
Susan
Luckily, for me, I can only stand so much of this before I begin searching for an exit stragedy. I just do not like feeling bad and I begin working on shift. I have to shift my thoughts. I have to shift my focus. I need to lift my eyes. I need to do it quick before I get infected. You see these sorts of thoughts and feeling are contagious and this is not what I want to catch. It could lead to me feeling sorry for myself and I refuse to do that, allow that, or live in that space.
I am given this verse tonight and want to share it with you
And now, dear brothers and sisters, one final thing. Fix your thoughts on what is true, and honorable, and right, and pure, and lovely, and admirable. Think about things that are excellent and worthy of praise. Philippians 4:8
Susan
Monday, December 5, 2011
The Innocence of Children
My beautiful son is 32 months old and fast approaching three years old. He has a great sense of humor and is language skills improve by the day. I still cannot keep my eyes off his face. I never tire of looking at him.
My heart is a bit heavy the last few days. My work brings me face to face with the pain and suffering that is so prevalent in this world we live in. We live in a world where people hurt each other, and whether or not the they do it intentionally or carelessly, the consequences are real. It is hard to avoid hearing about it and sadly the triumphs in this life are not broadcast as far or as often.
I write this because we are in the Christmas season. This is a time of celebrating the birth of the child that came to save the world. Yes. it has become very commercialized, but through the eyes of a child it is a beautiful, magical time. My son is awestruck by the lights and the decorations. He looks at the houses and all their adornments with admiration. They glow so pretty in the dark.
I intend to take this heavy heart of mine and work on making this year a time of celebration for my son. I commit to protecting his innocence and I commit to protecting him. I will guard myself when I am angry or tired or feeling sick and respond to him lovingly. I will forgive myself and re-commit when I fall short because I am a human parent.
I will use appropriate discipline that is neither harsh nor abusive because I love him and it is my job to guide him but not harm him. I will remember that I have a voice and an influence in this world. I will continue to shine my light into the world in the hope and prayer that I can make a difference in other children's lives as well. They will grow to be the citizens and neighbors of my son.
I hope and pray that this will be a reminder to you, this Christmas season, to be kind and generous. I hope you will also shine your light into a dark world and offer a hand to lift someone up.
Susan
In the same way, let your light shine before men, that they may see your good deeds and praise your Father in heaven. Matthew 5:16
My heart is a bit heavy the last few days. My work brings me face to face with the pain and suffering that is so prevalent in this world we live in. We live in a world where people hurt each other, and whether or not the they do it intentionally or carelessly, the consequences are real. It is hard to avoid hearing about it and sadly the triumphs in this life are not broadcast as far or as often.
I write this because we are in the Christmas season. This is a time of celebrating the birth of the child that came to save the world. Yes. it has become very commercialized, but through the eyes of a child it is a beautiful, magical time. My son is awestruck by the lights and the decorations. He looks at the houses and all their adornments with admiration. They glow so pretty in the dark.
I intend to take this heavy heart of mine and work on making this year a time of celebration for my son. I commit to protecting his innocence and I commit to protecting him. I will guard myself when I am angry or tired or feeling sick and respond to him lovingly. I will forgive myself and re-commit when I fall short because I am a human parent.
I will use appropriate discipline that is neither harsh nor abusive because I love him and it is my job to guide him but not harm him. I will remember that I have a voice and an influence in this world. I will continue to shine my light into the world in the hope and prayer that I can make a difference in other children's lives as well. They will grow to be the citizens and neighbors of my son.
I hope and pray that this will be a reminder to you, this Christmas season, to be kind and generous. I hope you will also shine your light into a dark world and offer a hand to lift someone up.
Susan
In the same way, let your light shine before men, that they may see your good deeds and praise your Father in heaven. Matthew 5:16
Thursday, November 24, 2011
Thanksgiving
Another Thanksgiving day has rolled around and due to the prompting, I have been thinking of what I am grateful for. This holiday, this month. for me is all about my grandmother Lucille Violette Audet. I do not know who said it first, but someone said that a woman's true power in the home, is the power to set the tone. I do not know what my grandmother would say about this but she set a tone in my life that has created a safe, warm childhood nest feeling which influences my every thought about how holidays in general, and Thanksgiving Day in particular, should be celebrated. Holiday decoration, excellent food as with as many of your family as you can fit in your home, to be exact.
My Grandmother is a fine woman and the finest example, in my opinion, of what a real grandmother is. To my knowledge she has no tattoos, no substance abuse issues, and has never been arrested. She is a woman who commands respect. There is an order to how things are done in her home, in her cooking, and on holidays and she is a woman who conducts herself with dignity and respect. She loves us in her quiet way and demonstrates that love with her cooking, her presence, and her legacy.
Mom and I were talking today about families and Thanksgiving and it seems that the cornerstone for a lot of people is the stuffing or dressing for the turkey. My grandmother's pork stuffing is the only stuffing for me because anything else is just not a family celebration. So many of my holiday celebrations and my grandmother's cooking are completely intertwined but the tone she set branches out much deeper and wide than food. (Though Christmas is coming and I remember fondly her holiday tin of fudge and other treats.)
For example, my grandmother was not content to watch us play and sit on the sidelines. My grandmother would suit up and swim with us. Sometimes, she would sun herself while we splashed around but she was right in the mix. Every year she would throw a New Year's skating party at camp and she would ice skate with us. Then she would make enough hot cocoa with marshmellows for an army. My grandfather is amazing too but I dont think about him in November...that is reserved for her.
I am sad on the days when I don't get to emulate and live out this rich legacy due to fatigue or pain. I am working hard to overcome cancer so that I may live the life I have dreamt of. Somedays, this fully encompasses my energy and I have no energy left. What I have, though, even on those days is a heart filled with hope that God will heal me. My earnest prayer is that I can be the sort of woman that my grandmother is and my parents are. I believe I can accomplish this, especially as I am lifted by all the prayer and generosity that is constantly added into my life by those of you who love me. I love you back.
Susan
My Grandmother is a fine woman and the finest example, in my opinion, of what a real grandmother is. To my knowledge she has no tattoos, no substance abuse issues, and has never been arrested. She is a woman who commands respect. There is an order to how things are done in her home, in her cooking, and on holidays and she is a woman who conducts herself with dignity and respect. She loves us in her quiet way and demonstrates that love with her cooking, her presence, and her legacy.
Mom and I were talking today about families and Thanksgiving and it seems that the cornerstone for a lot of people is the stuffing or dressing for the turkey. My grandmother's pork stuffing is the only stuffing for me because anything else is just not a family celebration. So many of my holiday celebrations and my grandmother's cooking are completely intertwined but the tone she set branches out much deeper and wide than food. (Though Christmas is coming and I remember fondly her holiday tin of fudge and other treats.)
For example, my grandmother was not content to watch us play and sit on the sidelines. My grandmother would suit up and swim with us. Sometimes, she would sun herself while we splashed around but she was right in the mix. Every year she would throw a New Year's skating party at camp and she would ice skate with us. Then she would make enough hot cocoa with marshmellows for an army. My grandfather is amazing too but I dont think about him in November...that is reserved for her.
I am sad on the days when I don't get to emulate and live out this rich legacy due to fatigue or pain. I am working hard to overcome cancer so that I may live the life I have dreamt of. Somedays, this fully encompasses my energy and I have no energy left. What I have, though, even on those days is a heart filled with hope that God will heal me. My earnest prayer is that I can be the sort of woman that my grandmother is and my parents are. I believe I can accomplish this, especially as I am lifted by all the prayer and generosity that is constantly added into my life by those of you who love me. I love you back.
Susan
Wednesday, November 23, 2011
Push, Pull and Drag
I want to apologize for my neglect of you and this blog as of late. I am acclimating to a new chemotherapy and each round brings a challenge by way of side effects on my body. I am now on Iexempra and it really hits the immune system hard so I am given Neulasta (an injection) the next day to boost my blood counts. It really throws me a for a loop.
This round I had only half an injection of the Neulasta and I am functioning again after a week. Praise the Lord!! I think it was a week and a half to two weeks last time. I had very little pain thanks to the Claritin which seems to aid in the histamine production of the immune system resulting from Neulasta injections. Weird but if it works....at this stage in the game...I am for it.
Today I was back at work and rather enjoyed the movement and not being knocked off my feet. Hooray for work! Hooray for feeling better. This new chemotherapy is working and my tumor markers have decreased from 903 to 682.
More interesting posts to come!
Susan
This round I had only half an injection of the Neulasta and I am functioning again after a week. Praise the Lord!! I think it was a week and a half to two weeks last time. I had very little pain thanks to the Claritin which seems to aid in the histamine production of the immune system resulting from Neulasta injections. Weird but if it works....at this stage in the game...I am for it.
Today I was back at work and rather enjoyed the movement and not being knocked off my feet. Hooray for work! Hooray for feeling better. This new chemotherapy is working and my tumor markers have decreased from 903 to 682.
More interesting posts to come!
Susan
Wednesday, November 9, 2011
The Hard Part...
Looking back at this journey, I would have to say that the hard part is staying upbeat and not giving in to feeling discouraged. I tend to struggle with this when I have a series of days when I feel sick and am in pain. It has been over two years now and I am still maintaining a remarkable good level of wellness but on the days following chemotherapy and the injection of Neulasta...it is hard to remember that.
If anyone has any tips on how they maintain a positive outlook when things are not going well then I hope you post it because I could use it. I find, for myself, that I lean on my support system during these times, I keep my eyes fixed on where I am going, and I try to keep moving forward and reminding myself that "this too shall pass."
When I do feel discouraged, I acknowledge this as reasonable and a normal part of the ebb and flow of life. It is easier for me to move past it when I validate why I feel this way rather than beat myself up or consider it a lack of faith. I cry a little. I sulk a little. I distract myself and then I try to get back on target.
Your thoughts and suggestions welcome.
Susan
If anyone has any tips on how they maintain a positive outlook when things are not going well then I hope you post it because I could use it. I find, for myself, that I lean on my support system during these times, I keep my eyes fixed on where I am going, and I try to keep moving forward and reminding myself that "this too shall pass."
When I do feel discouraged, I acknowledge this as reasonable and a normal part of the ebb and flow of life. It is easier for me to move past it when I validate why I feel this way rather than beat myself up or consider it a lack of faith. I cry a little. I sulk a little. I distract myself and then I try to get back on target.
Your thoughts and suggestions welcome.
Susan
Thursday, November 3, 2011
Quotes on Cancer
If children have the ability to ignore all odds and percentages, then maybe we can all learn from them. When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or fight like hell. ~Lance Armstrong
We shall draw from the heart of suffering itself the means of inspiration and survival. ~Winston Churchill
Hope is that thing with feathers that perches in the soul and sings the tune without the words and never stops... at all. ~Emily Dickinson
The power of love to change bodies is legendary, built into folklore, common sense, and everyday experience. Love moves the flesh, it pushes matter around.... Throughout history, "tender loving care" has uniformly been recognized as a valuable element in healing. ~Larry Dossey
We shall draw from the heart of suffering itself the means of inspiration and survival. ~Winston Churchill
Hope is that thing with feathers that perches in the soul and sings the tune without the words and never stops... at all. ~Emily Dickinson
The power of love to change bodies is legendary, built into folklore, common sense, and everyday experience. Love moves the flesh, it pushes matter around.... Throughout history, "tender loving care" has uniformly been recognized as a valuable element in healing. ~Larry Dossey
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